Sunday 30 December 2012

After The Storm

A friend told me this story shortly after my son died. I don't know who wrote it but it has provided some comfort and perspective. I read it as a message of hope...


When a devastating storm comes, an area is often completely laid waste. There may be a warning, but even then, the intensity of the storm often takes everyone by surprise. Nothing can stand in the pathway of the storm, and everything that was held sacred or precious may be lost or ruined. Trees are uprooted, buildings are wrecked, possessions can be swept away; the landscape looks completely unrecognisable. Those who live there can choose to stay, to try and protect what they hold dear from the storm, or can go whilst the storm is at its fiercest and return afterwards to assess what happened. Whatever they do, they cannot prevent damage.

But given time, the devastation seems to settle. Where the ground was ravaged and empty, new plants start to grow. Often these are plants which would never have been able to grow before the devastation of the storm because the older plants were too well established. Some of the wrecks and ruins are removed, others may be left as a reminder or memorial to what happened. Parts of the wreckage may be used to build new and different buildings, possessions are repaired or replaced.

And some time down the line, though a stranger may look at an area and not realise the utter devastation that occurred there previously, those who live there, and lived through the storm will know that the area has been shaped to be what it is because of what happened during and After the Storm.

Thursday 27 December 2012

Christmas: past, present and future

Nine years ago, in memory of our grandma, my sister and I started a Christmas tradition: the exchange of baubles. Grandma had a small, artificial Christmas tree, which she decorated with coloured fairy lights and tinsel. She also had a collection of mis-matched ornaments that she had accumulated over the years. I have some of them on my tree now. There were always two pots of sweets under the tree - one for me and one for my sister. Grandma would buy us a present each to open on Christmas Day and a dozen or so small presents (crayons, hair clips, puzzle books etc), which she would hide around her house for us to find on a Boxing Day treasure hunt. After she died, my sister and I wanted to continue the childhood magic of grandma's Christmas, so we decided that each year we would buy each other a Christmas decoration.

We have now extended the tradition to our children. I buy a bauble for each of my nephews and my daughter receives a bauble from each of her aunties. The idea is that each child will have a unique set of Christmas decorations to take with them when they have grown up and leave home. This year, my daughter received a fuzzy seal pup, a rag-doll angel and a wooden Santa.

I also buy a bauble each year for my daughter. The year she was born, I ordered a glass bauble with a Christmas tree inside, personalised with her name and birth year. It's too precious to put on the tree at the moment, in case it gets knocked off and broken. When she's older, I will give it to her. I'm hoping she'll take good care of it and put it on her own tree. This Christmas, I gave her a little snow globe.

This year, I ordered another personalised bauble, in memory of my son. I thought about buying a glass one but I decided against that because I wanted to put it on the tree and not worry about it breaking. So, I bought a silver one, with his name and birth year engraved onto it. It has taken pride of place, high up on my tree, alongside a similar ornament, engraved with his sister's name and birth year. I like being able to see my children's baubles together on the tree.

Christmas is normally one of my favourite seasons but this year I haven't felt like celebrating. We have had a nice time with family but it was not the Christmas I had planned. However, continuing the bauble exchange has reminded me how lucky I am to have close family and to be able to pass new traditions on in memory of those who cannot be with us.

Sunday 16 December 2012

Mum's the word

I am so grateful to our family and friends who have donated funds to the Mum's the Word appeal in memory of Monty. Together, we have raised over £700 (not including the gift aid!) and there's more to come as we have a promise of sponsorship from someone who is running the London Marathon in 2013. I am proud that we will have a hot air balloon dedicated to Monty's memory on the hospital's fundraising wall.

We feel so grateful for the kind and tender care we received when we found out that our baby had died and would be stillborn. All the midwives, doctors, and hospital staff made us as comfortable as they could and were sensitive to our feelings, needs and wishes. I can look back and remember the very special (albeit heart-breaking) experience of giving birth to my precious son and am glad to have received such excellent care.

I hope that our contribution will go some way to helping ensure that high-quality care will continue to be provided to other mothers, babies and families at Southmead Hospital...

...and, perhaps, one day, we will be lucky enough to receive their care again?

Friday 14 December 2012

A Dancing Star

A friend shared her story with me and gave me a book that had provided her with comfort and strength. The book is called "A Dancing Star". It is an anthology of quotations: 'inspirations to guide and heal'. It is a welcome gift.

Having looked through it only once, so far, I have already found words that help to assign context and meaning to my grief. I am not the first person to have loved and lost. I will not be the last.

These two thoughts have helped me today:

"Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."
Virginia Slater

"Truly, it is in the darkness that one finds the light, so when we are in sorrow, then this light is nearest of all to us."
Meister Eckhart

This book will be my handbag companion for some time to come...

Wednesday 12 December 2012

Festival of light

We have invited family and friends to join us today in remembering our baby boy. Since they are geographically dispersed and the weather is not great at this time of year, we have decided not to ask people to travel to Bristol for a remembrance event. However, we want to mark the date on which we were hoping to welcome Monty to the world and give those who care about us and have been affected by his loss an opportunity to say their own goodbye or prayer for him.

So, we're holding a Festival of Light this evening. We will be lighting candles and, if the weather permits, we will send up a few Chinese lanterns. Our friends and family will join us, from wherever they are across the UK and overseas, in lighting candles and spending a few minutes thinking of baby Monty.


I'll be thinking of my delight at discovering I was pregnant again, the plans I had made for another year on maternity leave, how my daughter practised at being a big sister, and how I was looking forward to being a mum of two. Although we never had the chance to develop a postnatal mother-son bond, Monty and I did a lot together in the 34 weeks that we co-existed. We climbed Skiddaw, rode on a Ferris Wheel, visited Weston-super-Mare, performed at Proms in the Meadow, competed at LABBS Convention, applied for several jobs (and got one!), and enjoyed a lot of cake! Monty would have recognised our voices and felt us stroke him through my bump. We have special memories of those 34 weeks that we can share as a family.

I will treasure the keepsakes in Monty's memory box and look at his photo on the windowsill. I will be reminded of him each time I look in the mirror and see my heart pendant. I physically carried him with me for nearly eight months and will carry his memory with me forever...

Monday 10 December 2012

I'll get by with a little help from my friends

Since Monty died, I've been given information about SANDS and the contact number for the local support group. I've received lots of cards, letters, emails and texts from friends. I have also been approached by people I don't know very well (such as, mums from toddler groups we attend) who know that I have lost my baby and who want to help in some way, even if just by going for a coffee.

I am lucky to have so many people who care about me and such a big support network and have decided that I need to start taking up some of these offers of help.

It can be hard to ask people to listen, when what I need to talk about is so sad, but I'm finding it very helpful to talk to friends (in particular, other mums) on a one-to-one basis. Some people have a similar experience to share, others have a different experience of loss and can empathise. In almost every case, I have found that it makes it easier to understand that my experience of grief is not unique and that I will, in time, start to feel better.

I'm on maternity leave from work at the moment and my daughter goes to nursery on three days of the week. I've got too much time to myself, which just gives me room to think too much, and I need to make sure that I spend some time every day in the company of others. Grown-up conversation is welcome and, on the days that I do have my daughter at home with me, it's good to meet up with other people who have toddlers for a play date.

I am determined to get back to my singing but I've been so tired in the evenings that I only made it to one half of a rehearsal in the past month (and I realised, when I got there, that I couldn't remember how any of the songs go!). It's the Christmas party on Thursday and I'm going to make a special effort to be there so that I can spend time with my friends before we break for the Christmas/New Year holiday.

I know that I'll never get over the loss of my baby (and why would I want to?) but I also know that, with a little help from my friends, I can regain some happiness, grow stronger and enjoy my "new normal" in a positive way.

Friday 7 December 2012

Silent baby


I cannot begin to describe the loss
Of a baby born asleep.
I cannot begin to describe the pain;
All I can do is weep.
The silence of a delivery room that
Should have been filled with joy,
The silence of a mother who has
Delivered a silent boy.

A dim-lit room, an empty womb,
The quiet tears that flow.
A baby, washed and dressed, whom
The world will never know.

When I wake up in the morning and
Then begin to cry
It's with sadness at remembering that
You are not nearby.
I sleep beside your memory box with
Precious items few:
Mementoes of the too-short time
I got to spend with you.

You died inside so quietly,
My body let you go,
But my heart will always love you,
Dear child I'll never know.

Monday 3 December 2012

One month on

This seems to have been the longest month of my life. Hours and days have elongated yet the weeks have passed quickly. How can one whole month have passed already since Monty was born?

It's hard to describe how I feel. I mourn the intimacy of maternal love for the baby growing inside and the lost potential of a life that never came to be. I am exhausted from lack of sleep and the effort required to get through each day. I feel incredibly sad and burdened by the thought that I have let everybody down.

The chaplain told me that it is perfectly normal for mothers to feel it is their fault when a baby dies. I have replayed over and over in my head the hours between my last midwife appointment and the scan at the hospital, looking for a missed signal that would have told me something was so terribly wrong. I feel I have failed as a mother in not being able to save my son, although medical advisors have said that, in all likelihood, no action on my part would or could have changed the outcome.

We are waiting for the results of the tests carried out postnatally on me and Monty and the results of the post mortem. We will be called back to the hospital to meet one of the consultants to go through all the results but have been told that, in the majority of cases, they are unable to determine the cause of death. It is important for us to understand if there was an identifiable reason for the loss of our baby and to consider the possibility of maybe trying for another child at some point in the future.

The world continues about its business but my life has been turned inside out. Plans, hopes and dreams have been shattered - the rug has been pulled from under my feet. I have never before felt so uncertain about my future. In a practical sense, we can continue where we left off but I know there will always be something missing and the unspoken, unanswered question - what if? When people ask me how I'm doing, my first answer is usually "OK" but friends who probe deeper and ask the right questions soon find out that I'm bewildered, confused, cast adrift, tearful...

Someone said to me "It's as if your life is a beautiful glass vase on a windowsill. One day, when the window is open, a breeze blows your vase onto the floor and it smashes into pieces. You collect up as many pieces as you can find but even if you try to glue them back together, there will be some pieces missing and it will never look the same again. So, melt the glass and make a new vase which, although different to the first one, can be equally beautiful."

Thursday 29 November 2012

The circle of life

I spent quite a lot of time during my second trimester preparing my daughter for the arrival of a baby brother or sister. I wanted to give her a sense of excitement for the forthcoming new addition to our family whilst teaching her the importance of caring for others. So, we read books about being a big sister and practised lots of role play with her toys (mainly with 'baby dolly') - snuggling them up cosy and warm under a blanket and pretending to give them milk to drink. We took an interest in other people's babies and talked about what activities we would do with our baby after he/she was born.

My daughter wanted to be like mummy and imagined that she too had a baby in her tummy. She would talk about how the baby would eat her dinner after she'd eaten it (I think my husband had tried to explain how babies are nourished through the umbilical cord). She took an interest in the movements in my bump and would kiss and stroke the baby through my tummy button.

I never imagined that I would end up having to try to explain why her brother isn't like other babies and that he is never coming home...


Tonight in the bath she said "When our baby comes back into your tummy..."

"No, sweetheart," I said "our baby isn't coming back into my tummy." I reminded her that he had been born but that he had died and that he isn't coming home.

"He's just in the picture" she said, sadly.


Yes, he's just in the picture. We have a photo of Monty on the windowsill. In the picture with him is his little soft bear rattle - a toy that we have given to our daughter as a gift from her brother and which she associates with the concept of 'our baby'.

We have been given lots of professional advice on how to explain death to children but it is hard to deal with the naivety and direct nature of some of my daughter's questions and statements. I can hardly understand what has happened myself, so how do I begin to make sense of it in a way that my daughter can comprehend? She is only two-and-a-half years old but she is confused by the sudden change - where is the baby we were preparing for? One thing is clear, she is grieving just as much as the rest of us for his loss.

I am sure that, as time goes on, I will be able to answer her questions a little better and without crying. I want her to know about Monty, to remember his name and to recognise his photo. He is my second child and her younger brother. He will always be 'our baby' but just in the picture, in our memories and in our hearts.

Tuesday 20 November 2012

Creating memories

This week, I would have been 37 weeks pregnant - officially full-term and anticipating the arrival of my baby. Instead, we held a small, private funeral to say goodbye to our little boy.

We have created a memory box to hold the few keepsakes we have of Monty:
  • scan photos
  • hand and foot prints
  • a few locks of hair
  • the yellow baby-gro I bought for him
  • ankle and wrist bands from the hospital
  • cot card
  • certificate of stillbirth
  • photos we took after he was born
  • a beautiful felt heart, embroidered with his name and birth date, made by a friend
  • order of service from the funeral
  • a copy of Monty's entry in the babies' book of remembrance at the hospital

We have bought two matching frames to keep a photo of each of our children on the windowsill, next to our wedding photo. I also bought a necklace with a heart pendant to wear every day in memory of my precious baby boy.

With Monty's due date in mid-December, I've had a silver Christmas bauble engraved with his name and the year. It will be hung on our tree so that we can think of him during the season of family togetherness.

Thursday 15 November 2012

And time goes by so slowly...

It seems as though time has slowed to a crawl this past fortnight. I hardly know what day it is, let alone the date or time. Two weeks ago, I waited for a call to attend a scan at the hospital and then my life was turned upside down.

There has been so much to do, think about and agree to. The only way I've been able to 'cope' is to break it down into chunks: deliver my baby; meet him and say goodbye; give consent for tests and a post mortem; register his birth; speak to the chaplain about funeral arrangements; and so it goes on...

I have never cried so much or so hard or drunk so many cups of tea.

I feel so desperately sad that I don't have my baby to hold, that my husband doesn't have his son, that my daughter is a big sister with no sibling. Our baby felt my love and care for 34 weeks but never got to enjoy the love of his extended family. If only I could have known that something was wrong - perhaps I could have saved him?

I have bad days and better days. One thing is certain, I couldn't have got through these last two weeks without the excellent and tender care received from the hospital and community midwives, love from my family, and support from our friends. We have received so many cards, texts, emails, letters and flowers - I am touched and comforted to know that people are sending us their thoughts and prayers as we try to understand what has happened.

The strength of love I feel for my husband and daughter is amplified; they keep me going.

The community midwife is coming to visit me today. I was supposed to be going to the clinic for my routine 36-week appointment but, instead, she is coming to see how I'm doing at home. I'm expecting to be discharged from midwife care and handed over to my GP and health visitor until my 6-week postnatal check. Somehow, over the coming weeks and months, I will have to find my "new normal" and learn to live in a different future to the one I had planned.

My husband said "The past is ours to remember, the future is ours to create..."

Thursday 8 November 2012

Goodbye before hello

I went for my routine 34-week midwife appointment not suspecting that there could be anything amiss with my pregnancy. I have been relatively fit and well (bar the bronchitis and sinusitis about a month ago) but had been quite busy on appointment day, so hadn't noticed much foetal movement. The midwife was concerned that I was measuring small for my dates and had difficulty finding the baby's heartbeat, although she did eventually get a strong signal on the doppler monitor. She referred me to the day assessment centre at the hospital for another scan and said I would be seen within 24 hours. I went home to have cold drinks, something to eat and take note of baby's movements. I did feel some movements during the evening and, although I was feeling a little anxious, I went to bed as normal.

The hospital phoned the next morning and I went in for the scan. Unfortunately, the ultrasound could not detect a heartbeat. My baby had died.

The sonographer and doctor were very kind and phoned my husband who came to the hospital straight away. I told him what had happened and they made us some tea. We were moved to a more comfortable room and several people came to see us and explain what would happen next. I don't remember everything that happened that afternoon but we decided to go home for the night, collecting our daughter from nursery on the way, to have as normal a family evening together as possible and try to process the news that we were losing our baby.

We told our parents and they told our sisters the sad news. We invited a midwife friend to come and sit with us for an hour in the evening and it really helped to have it all explained to us again by a friend. We arranged for my mother-in-law to come the next day and stay for a few days to look after our daughter whilst we prepared ourselves for more hospital appointments and the loss of our baby.

I didn't sleep very well that night. Butterflies swarmed around my stomach and I felt incredibly thirsty. I was up every hour and eventually got up at 5.30am to try to eat some breakfast. It's hard to eat when you have no appetite and feel queasy but an empty stomach somehow feels worse. Plain food, eaten cold, little and often helped to keep the edge off my hunger.

We had been told to return to the hospital once we had childcare sorted for our daughter. After my in-laws had arrived and been settled in at our house, we took my overnight bag, toiletries and a few extras to make us feel more comfortable to the hospital to speak to more doctors and midwives and start the process of delivering our baby. I hadn't realised there would be so many decisions to make and so much  time to wait between different stages of the process.

We spent a couple of hours in the hospital. I took the first set of medication and managed to get some sleep. The hospital made two rooms available to us - one was like a hotel room (double bed, comfy chairs, tea/coffee making facilities, fridge, tv); the other like a hospital room (with hospital bed, medical equipment and en suite bathroom). We were told that these rooms would be available to us all weekend and that we could stay as long as we liked. We stayed in the comfortable room and then, when I woke up, decided to go home again because the second set of medication could not be administered until at least 24 hours had passed.

My mother arrived that evening. She wanted to help with the delivery and see the baby born. I went to bed early and despite my churning stomach, I managed to get some sleep (more likely through exhaustion than anything else).

The next morning, after a small breakfast, my husband and I went for a short walk to get some fresh air. Having spent so much time indoors, sitting or lying on beds and chairs, it was good to stretch our legs and feel some sunshine. After lunch (not that I could eat anything), my mum, husband and I went to the hospital for the induction.

Our baby boy was stillborn that evening, six weeks ahead of his due date. Mum helped the midwife to wash and dress him for us. They took hand and footprints as a keepsake. We named him and were given some quiet time alone with him to take photos before he went to the chapel of rest.

I am the mother of two beautiful children but my baby son is never coming home.